Journals / Fizyoterapi Rehabilitasyon / 2009 / Cilt: 20 - Sayı: 2

Perception of health related quality of life in patients with hereditary and acquired neurological diseases: A retrospective clinical study

Kalıtımsal ve edinilmiş nörolojik hastalıklarda sağlıkla ilgili yaşam kalitesinin algılanması: Retrospektif klinik çalışma

Pages
56–63
Publication Date
2022-10-17
DOI
—
🏛️Bibliographic metadata and full text access for this article are provided via DergiPark.
DergiPark Record ↗
✨

AI Summary & Key Takeaways

AI Insight
⚡ TL;DR(Too Long; Didn't Read)

Due tothe nature of the neurological disease, HRQoL which can be affected in various dimensions,should be observed closely with regard to the objectives of the neurological rehabilitationprograms.

📌 3 Key Takeaways

🎯
Objective & Hypothesis:Purpose: To compare perceived health related quality of life (HRQoL) of two different patientgroups of neurological diseases.
📊
Key Findings & Data:Materials and methods: In this study 54 (28/26 -male/female) ambulatory patients who had participated in an outpatient treatment program in aneurological rehabilitation unit and having similar demographic, physical and functionalcharacteristics were evaluated.
💡
Conclusion & Impact:Due tothe nature of the neurological disease, HRQoL which can be affected in various dimensions,should be observed closely with regard to the objectives of the neurological rehabilitationprograms.
🔬Design:Research Article
📍Scope:Comprehensive Sample
⚙️Variables:Domain Parameters

Abstract

Purpose: To compare perceived health related quality of life (HRQoL) of two different patientgroups of neurological diseases. Materials and methods: In this study 54 (28/26 -male/female) ambulatory patients who had participated in an outpatient treatment program in aneurological rehabilitation unit and having similar demographic, physical and functionalcharacteristics were evaluated. The patients were divided into two groups depending on theircongenital (N=27) and acquired (N=27) neurological diseases. Information related tobackgrounds, their pain complaints, functional levels (Functional Independence Measurement),mobility (Rivermead Mobility Index) and perceived HRQoL (Nottingham Health Profile) levelswere recorded from their files retrospectively. Results: There was no significant differencebetween the RMI and FIM scores (p>0.05). The energy level, emotional reactions, physicalactivity parameters and the total scores of the NHP in the group with congenital neurologicaldisease were significantly higher than the other group (p0.05). Discussion: Perceived HRQoL of the patients with the congenital neurologicaldisorders were lower than the the other patients with acquired neurological diseases. Due tothe nature of the neurological disease, HRQoL which can be affected in various dimensions,should be observed closely with regard to the objectives of the neurological rehabilitationprograms.

Özet

Amaç: Kalıtımsal ve edinilmiş iki farklı grup nörolojik hastalıkta, sağlıkla ilgili yaşam kalitesi(SİYK) algılamasını karşılaştırmaktır. Gereç ve yöntem: Çalışmada, nörolojik rehabilitasyonünitesinde ayaktan tedavi programına katılan demografik, fiziksel ve fonksiyonel özellikleri yakınve bağımsız olarak toplum içerisinde yürüyebilen 54 (28/26-erkek/kadın) nörolojik hastadeğerlendirildi. Hastalar, kalıtımsal (N=27) veya edinilmiş (N=27) nörolojik hastalığa sahip olmadurumlarına göre iki gruba ayrıldı. Ağrı, diğer özgeçmiş bilgileri, fonksiyonel seviye (FonksiyonelBağımsızlık Ölçeği (FBÖ)), mobilite (Rivermead Mobilite İndeksi (RMİ)) ve SİYK algılamadüzeyleri (Nottingham Sağlık Profili (NSP)) dosya kayıtlarından geriye dönük olarak kaydedildi.Sonuçlar: Gruplar arasında RMİ ve FBÖ puanları arasında anlamlı bir farklılığın bulunmadığı(p>0.05). Enerji seviyesi, emosyonel reaksiyonlar, fiziksel aktivite ve toplam SİYK puanlarınınkalıtımsal nörolojik hastalığı bulunan grupta, diğer gruba göre daha yüksek ve aradaki farkınanlamlı olduğu belirlendi (p0.05). Tartışma: Çalışmamızın sonucunda, kalıtımsal nörolojik hastalığasahip kişilerin SİYK’ni edinilmiş nörolojik hastalığa sahip kişilerden daha düşük algıladıklarıgörüldü. Nörolojik hastalığın doğası nedeniyle farklı boyutlarda etkilenebilen SİYK, nörolojikrehabilitasyon programlarının hedefleri açısından yakından izlenmelidir.

🔖

Cite This Article

KILINÇ, M., İYİGÜN, G., YILDIRIM, A. S., ATAY, S. (2022). Perception of health related quality of life in patients with hereditary and acquired neurological diseases: A retrospective clinical study. Fizyoterapi Rehabilitasyon, Cilt: 20 - Sayı: 2, 56–63. https://ajindex.com/articles/516873

📄 Full Text PDF Viewer

📄

PDF görüntüleyici hazırlanıyor...

References (15)

  1. Grootenhuis MA, de Boone J, van der Kooi A. Living with muscular dystrophy: health related quality of life consequences for children and adults. Health Qual Life Outcomes. 2007;5:31
  2. Salter KL, Moses MB, Foley NC, et al. Health related quality of life after stroke: what we are measuring? Int J Rehabil Res. 2008;31:111–117
  3. Boyer F, Morrone I, Laffont I, et al. Health related quality of life in people with hereditary neuromuscular disease: an investigation of test-retest agreement with comparison between two generic qustionnaires, the Nottingham health profile and short form-36 items. Neuromuscul Disord. 2006;16:99–106
  4. Şenocak Ö, El Ö, Söylev ÖG ve diğerleri. İnme sonrasında yaşam kalitesini etkileyen faktörler. J Neurol Sci (Turkish). 2008;25:164–170
  5. McDonald CM. Physical activity, health impairments and disability in neuromuscular disease. Am J Phys Med Rehabil. 2002;81:108–120
  6. Carter GT. Rehabilitation management in neuromuscular disease. J Neuro Rehab. 1997;11:69–80
  7. Fowler WM Jr, Abresch RT, Koch TR, et al. Employment profiles in neuromuscular diseases. Am J Phys Med Rehabil. 1997;76:26–37
  8. Wenneberg S, Gunnarsson L, Ahlström G. Using a novel exercise programme for patients with muscular dystrophy. part I: a qualitative study. Disabil Rehabil. 2004;26: 586–594
  9. Nätterlund B, Gunnarsson L, Ahlström G. Disability, coping and quality of life in ındividuals with muscular dystrophy: a prospective study over five years. Disabil Rehabil. 2000;22:776–785
  10. Nätterlund B, Ahlström G. Activities of daily living and quality of life person with muscular dystrophy. J Rehab Med. 2001;33:206–211
  11. Brandstater M. Stroke Rehabilitation. In: Delisa JA, Gans B.M eds. Rehabilitation and Medicine Principles and Practice. Lippincott Williams & Wilkins, Philadelphia; 1998: 1165–1190
  12. Fernandes MR, Carvalho LBC, Prado GF. A functional electrical orthesis on the paretic leg ımproves quality of life of stroke patients. Arq Neuropsiquiatr. 2006;64: 20–23 13. Clarke PJ, Black SE, Badley EM, et al. Handicap in stroke survivors. Disabil Rehabil. 1999;21:116–123
  13. Ostir GV, Berges IM, Ottenbacher ME, et al. Associations between positive emotion and recovery of functional status following stroke. Psychosom Med. 2008;70:404–409
  14. Kong K, Woon V, Yang S. Prevalence of chronic pain and its impact on health-related quality of life after stroke survivors. Arch Phys Med Rehabil. 2004;85:35–40
  15. Vincent KA, Carr AJ, Walburn J, et al. Construct