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Journals / Anatolian Current Medical Journal / 2026 / Volume: 8 Issue: 6

Participation and health-related quality of life of Syrian refugee children with cerebral palsy in Turkiye

Cemil Özal(Hacettepe Üniversitesi)0000-0001-5692-3814
Eda Burç0000-0002-4127-8426
Özden Gökçek(EGE UNIVERSITY)0000-0003-3396-4108
Mintaze Kerem Günel(HACETTEPE ÜNİVERSİTESİ, FİZİK TEDAVİ VE REHABİLİTASYON YÜKSEKOKULU, FİZİK TEDAVİ VE REHABİLİTASYON PR.)0000-0003-4942-5272
Pages
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Publication Date
2026-10-25
DOI
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AI Summary & Key Takeaways

AI Insight
⚡ TL;DR(Too Long; Didn't Read)

These findings highlight the influence of migration-related socioeconomic and environmental disadvantages on participation and well-being and emphasize the need for accessible rehabilitation services, inclusive social policies, and culturally sensitive support systems for refugee children with disabilities.

📌 3 Key Takeaways

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Objective & Hypothesis:Aims: This study aimed to investigate participation and health-related quality of life (HRQoL) in Syrian refugee children with cerebral palsy (CP) living in Turkiye and to compare the findings with Turkish children with CP matched for age and gross motor function level.
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Key Findings & Data:Methods: This cross-sectional study included 25 Syrian refugee children with CP and 25 Turkish children with CP aged 5-18 years.
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Conclusion & Impact:These findings highlight the influence of migration-related socioeconomic and environmental disadvantages on participation and well-being and emphasize the need for accessible rehabilitation services, inclusive social policies, and culturally sensitive support systems for refugee children with disabilities.
🔬Design:Survey & Empirical Study
📍Scope:Comprehensive Sample
⚙️Variables:Cerebral palsy · social participation · quality of life

Abstract

Aims: This study aimed to investigate participation and health-related quality of life (HRQoL) in Syrian refugee children with cerebral palsy (CP) living in Turkiye and to compare the findings with Turkish children with CP matched for age and gross motor function level. Methods: This cross-sectional study included 25 Syrian refugee children with CP and 25 Turkish children with CP aged 5-18 years. Participation was evaluated using the Child and Adolescent Scale of Participation (CASP), and HRQoL was assessed using the Cerebral Palsy Quality of Life Questionnaire for Children and Teenagers (CP HRQoL-Child&Teen). All children were classified by the Gross Motor Function Classification System. Results: Syrian children with CP demonstrated significantly lower participation levels across all CASP domains compared with Turkish children with CP, including home participation (p=0.004), school participation (p=0.047), community participation (p=0.004), and home/community living activities (p=0.003). The CASP total score was also significantly lower in Syrian children (43.89±14.48) compared with Turkish children (59.25±19.13; p=0.004). Similarly, Syrian children had significantly lower HRQoL scores in all CP HRQoL domains, including general well-being and participation (p<0.001), communication and physical health (p=0.008), school situation (p=0.002), and social well-being (p=0.001). Conclusion: Syrian refugee children with CP living in Turkiye experience lower participation and HRQoL compared with Turkish children with CP. These findings highlight the influence of migration-related socioeconomic and environmental disadvantages on participation and well-being and emphasize the need for accessible rehabilitation services, inclusive social policies, and culturally sensitive support systems for refugee children with disabilities.

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Cite This Article

Özal, C., Burç, E., Gökçek, Ö., Günel, M. K. (2026). Participation and health-related quality of life of Syrian refugee children with cerebral palsy in Turkiye. Anatolian Current Medical Journal, Volume: 8 Issue: 6. https://ajindex.com/articles/1667851

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References (33)

  1. Dan B, Rosenbaum P, Carr L, et al. Updated description of cerebral palsy. Dev Med Child Neurol. 2026;68(4):465-476. doi:10.1111/dmcn.70149
  2. Marpole R, Blackmore AM, Gibson N, et al. Evaluation and management of respiratory illness in children with cerebral palsy. Front Pediatr. 2020;8:333. doi:10.3389/fped.2020.00333
  3. Sellier E, McIntyre S, Smithers-Sheedy H, et al. European and Australian cerebral palsy surveillance networks working together for collaborative research. Neuropediatrics. 2020;51(2):105-112. doi:10.1055/s-0039-3402003
  4. Serdaroğlu A, Cansu A, Ozkan S, Tezcan S. Prevalence of cerebral palsy in Turkish children between the ages of 2 and 16 years. Dev Med Child Neurol. 2006;48(6):413-416. doi:10.1017/S0012162206000910
  5. Kerem Gunel M, Özcebe H, Arslan UE, et al. Participation into daily life of children with cerebral palsy with multidimensional perspectives: a study protocol. J Exerc Ther Rehabil. 2019;6(1):62-70.
  6. Kerem Gunel M, Arslan UE, Seyhan Bıyık K, et al. Evaluation of daily and social participation of children with cerebral palsy across different age groups with a focus on the ‘F′-words: function, family, fitness, fun, friends and future. Res Dev Disabil. 2023;140:104588. doi:10.1016/j.ridd.2023.104588
  7. Burç E, Özal C, Kerem Gunel M. The relationship among the functional levels, dyskinetic movements and participation in children with dyskinetic cerebral palsy. Neurol Asia. 2024;29(2):453-464. doi:10.54029/2024kmn
  8. Bingol H, Gunel MK, Asena Sel S, Burc E, Fidan H. Validity and reliability of the Turkish version of the KIDSCREEN-27 for individuals with cerebral palsy. Percept Mot Skills. 2023;130(1):317-339. doi:10.1177/00315125221136947
  9. Gelkop N, Engel-Yeger B. Participation, environment, and quality of life in children with cerebral palsy and physical disabilities. Dev Med Child Neurol. 2026;68(6):800-809. doi:10.1111/dmcn.70079
  10. Gagliardi J, Brettschneider C, König HH. Health-related quality of life of refugees: a systematic review of studies using the WHOQOL-Bref instrument in general and clinical refugee populations in the community setting. Confl Health. 2021;15(1):44. doi:10.1186/s13031-021-00378-1
  11. Dinç Güzel H. Türkiye'de yaşayan Suriyeli göçmenlerin sorunları ve Suriyeli göçmenlere yönelik kamu politikaları. Yüksek lisans tezi. İstanbul Medeniyet Üniversitesi Lisansüstü Eğitim Enstitüsü; 2021.
  12. T.C. İçişleri Bakanlığı Göç İdaresi Başkanlığı. Geçici korumamız altındaki Suriyeliler. Accessed September 1, 2026. https://www.goc.gov.tr/gecici-korumamiz-altindaki-suriyeliler
  13. UNICEF. Report on analysis for out-of-school Syrian children: Türkiye country report. UNICEF; 2024. Accessed September 1, 2026.
  14. Kunuroglu F, Yuzbasi DV, Kaval S, Kucukyilmaz E. Comparative evaluation of health status of Syrian refugee and Turkish children, alongside the factors influencing sociocultural adaptation of Syrian children in Turkiye. Child Care Health Dev. 2025;51(1):e70042. doi:10.1111/cch.70042
  15. Rohwerder B. Syrian refugee women, girls, and people with disabilities in Turkey. K4D Helpdesk Report. Brighton, UK: Institute of Development Studies. 2018
  16. Bucak IH, Almis H, Benli S, et al. An overview of the health status of Syrian refugee children in a tertiary hospital in Turkey. Avicenna J Med. 2017;7(03):110-114. doi:10.4103/ajm.AJM_17_17
  17. El Ö, Baydar M, Berk H, et al. Interobserver reliability of the Turkish version of the expanded and revised Gross Motor Function Classification System. Disabil Rehabil. 2012;34(12):1030-1033. doi:10.3109/09638288.2011.632466
  18. Atasavun Uysal S, Dülger E, Bilgin S, et al. Validity and reliability study of the Child and Adolescent Participation Survey (CASP) in Turkish. XVII. Fizyoterapi ve Rehabilitasyonda Gelişmeler Kongresi. Turk J Physiother Rehabil. 2018;29:87
  19. Atasavun Uysal S, Düger T, Elbasan B, Karabulut E, Toylan İ. Reliability and validity of the Cerebral Palsy Quality of Life Questionnaire in the Turkish population. Percept Mot Skills. 2016;122(1):150-164. doi:10.1177/0031512515625388
  20. Çelik S. Türk toplumunda serebral palsili ergenlerde CP-QOL Teen ölçeğinin geçerlilik-güvenirlilik değerlendirilmesi. Uzmanlık tezi. Ege Üniversitesi Tıp Fakültesi, Fiziksel Tıp ve Rehabilitasyon Anabilim Dalı; 2012.
  21. Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. Hillsdale (NJ): Lawrence Erlbaum Associates; 1988.
  22. Tomczak M, Tomczak E. The need to report effect size estimates revisited. An overview of some recommended measures of effect size. Trends Sport Sci. 2014;21(1):19-25.
  23. King G, Law M, King S, et al. Children with cerebral palsy participate: a review of the literature. Dev Med Child Neurol. 2010;52(8):773-784. doi:10.1080/09638280701673542
  24. Aras B, Yasun S. The educational opportunities and challenges of Syrian refugee students in Turkey: temporary education centers and beyond. İstanbul Policy Center; 2016.
  25. UNICEF. Children with disabilities in humanitarian settings: challenges and response strategies. 2018
  26. Mirza MP, Kim Y, Stoffel A, Carroll T, Magaña S. Social participation and disability among children from underserved immigrant and nonimmigrant households. Occup Ther Health Care. 2015;29(4):411-428. doi:10.3109/07380577.2015.1037944
  27. Arfa S, Solvang PK, Berg B, Jahnsen R. Challenges and facilitators in supporting sustainable participation after rehabilitation: experiences of immigrant parents and their children with disabilities. Scand J Occup Ther. 2022;29(8):631-644. doi:10.1080/11038128.2020.1856183
  28. Jahan I, Muhit M, Hardianto D, et al. Epidemiology of cerebral palsy in low-and middle-income countries: preliminary findings from an international multi-centre cerebral palsy register. Dev Med Child Neurol. 2021;63(11):1327-1336. doi:10.1111/dmcn.14926
  29. Makris T, Dorstyn D, Crettenden A. Quality of life in children and adolescents with cerebral palsy: a systematic review with meta-analysis. Disabil Rehabil. 2021;43(3):299-308. doi:10.1080/09638288.2019.1623852
  30. Jacobs EA, Shepard DS, Suaya JA, Stone EL. Overcoming language barriers in health care: costs and benefits of interpreter services. Am J Public Health. 2004;94(5):866-869. doi:10.2105/ajph.94.5.866
  31. Gimeno-Feliu LA, Calderón-Larrañaga A, Diaz E, Poblador-Plou B, Macipe-Costa R, Prados-Torres A. The healthy migrant effect in primary care. Gac Sanit. 2015;29(1):15-20. doi:10.1016/j.gaceta.2014.07.007
  32. Mushta SM, Khandaker G, Power R, Badawi N. Cerebral palsy in the Middle East: epidemiology, management, and quality of life. In: Handbook of Healthcare in the Arab World. Cham: Springer International Publishing; 2021:2539-2572. doi:10.1007/978-3-030-36811-1_111
  33. Raina P, O'Donnell M, Schwellnus H, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115(6): e626-e636. doi:10.1542/peds.2004-1689