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Journals / Kırşehir Ahi Evran Üniversitesi Sağlık Bilimleri Dergisi / 2025 / Cilt: 9 Sayı: 3

The Determination of Care Burden and Compassion Levels of Parents Providing Care to Patients with Cerebral Palsy

SEREBRAL PALSİLİ HASTALARA BAKIM VEREN EBEVEYNLERİN BAKIM YÜKÜ VE MERHAMET DÜZEYLERİNİN BELİRLENMESİ

İlayda Kömürcü(İSTANBUL ESENYURT ÜNİVERSİTESİ)0000-0002-3099-0661
Nilhan Töyer Şahin(İSTANBUL ESENYURT ÜNİVERSİTESİ)0000-0001-7804-4183
Pages
424–449
Publication Date
2025-12-15
DOI
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AI Summary & Key Takeaways

AI Insight
⚡ TL;DR(Too Long; Didn't Read)

It was found that those with a university education, those who could not cover the child’s expenses, those who could not benefit from their spouse in the care of the child, and those who had no one other than their spouse to help in the care of the child had higher mean scores on both the Caregiver Burden Scale and the Compassion Scale, and the differences were statistically significant.

📌 3 Key Takeaways

🎯
Objective & Hypothesis:The aim of the study is to determine the caregiver burden and compassion levels of parents who provide care to individuals with cerebral palsy.
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Key Findings & Data:This cross-sectional study was conducted with 158 parents who provided care to individuals with cerebral palsy being followed at rehabilitation centers in Istanbul.
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Conclusion & Impact:It was found that those with a university education, those who could not cover the child’s expenses, those who could not benefit from their spouse in the care of the child, and those who had no one other than their spouse to help in the care of the child had higher mean scores on both the Caregiver Burden Scale and the Compassion Scale, and the differences were statistically significant.
🔬Design:Araştırma Makalesi
📍Scope:Comprehensive Sample
⚙️Variables:bakım yükü · ebeveyn · merhamet.

Abstract

The aim of the study is to determine the caregiver burden and compassion levels of parents who provide care to individuals with cerebral palsy. This cross-sectional study was conducted with 158 parents who provided care to individuals with cerebral palsy being followed at rehabilitation centers in Istanbul. Data were collected face-to-face using the Personal Information Form, the Caregiver Burden Scale, and the Compassion Level Scale Inquiry Form. It was found that those with a university education, those who could not cover the child’s expenses, those who could not benefit from their spouse in the care of the child, and those who had no one other than their spouse to help in the care of the child had higher mean scores on both the Caregiver Burden Scale and the Compassion Scale, and the differences were statistically significant. It was found that those with the ataxic type of cerebral palsy and those with additional problems along with cerebral palsy had statistically significant higher mean scores on the Caregiver Burden Scale and the Compassion Scale. As a result, it is recommended that the care needs of parents who provide care to individuals with cerebral palsy be identified and that treatment be evaluated with a holistic approach.

Özet

Çalışmanın amacı; serebral palsili hastalara bakım veren ebeveynlerin bakım yükü ile merhamet düzeylerinin belirlenmesidir. Kesitsel tipteki çalışma İstanbul ilindeki rehabilitasyon merkezlerinde takip edilen serebral palsili hastalara bakım veren 158 ebeveyn ile gerçekleştirildi. Veriler, Kişisel Tanımlayıcı Form, Bakım Verme Yükü Ölçeği ve Merhamet Düzeyi Ölçeği Sorgulama Formu ile yüz yüze olarak toplandı. Araştırmaya katılan ebeveynlerden eğitim durumu üniversite olanların, çocuğun masraflarını karşılayamayan, çocuğun bakımında eşinden faydalanamayan, çocuğun bakımında eşinden başka yardım edeni olmayanların bakım verme yükü ölçeği ve merhamet ölçeği puan ortalamalarının daha yüksek ve aralarındaki farkın istatistiksel olarak anlamlı olduğu bulundu. Serebral palsi tipi ataksik tip olan, serebral palsi ile birlikte başka sorunu olanların Bakım Verme Yükü Ölçeği ve Merhamet Ölçeği puan ortalamalarının istatistiksel olarak anlamlı olduğu bulundu. Sonuç olarak, serebral palsili hastalarla beraber bakım veren ebeveynlerin de bakım ihtiyaçlarının belirlenerek tedavinin bütüncül yaklaşımla değerlendirilmesi önerilmektedir.

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Cite This Article

Kömürcü, İ., Şahin, N. T. (2025). The Determination of Care Burden and Compassion Levels of Parents Providing Care to Patients with Cerebral Palsy. Kırşehir Ahi Evran Üniversitesi Sağlık Bilimleri Dergisi, Cilt: 9 Sayı: 3, 424–449. https://ajindex.com/articles/1520400

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References (47)

  1. Akdeniz, S., & Deniz, M.E. (2016). Adaptation of the Compassion Scale into Turkish: Validity and reliability study. The Journal of Happiness & Well-Being, 4(1), 50-61.
  2. Albayrak, I., Biber, A., Çalışkan, A., & Levendoğlu, F. (2019). Assessment of pain, care burden, depression level, sleep quality, fatigue and quality of life in the mothers of children with cerebral palsy. Journal Child Heal Care, 23(3), 483-494. https://doi.org/10.1177/1367493519864751
  3. Arkan, B., Yılmaz, D., & Düzgün, F. (2020). Determination of compassion levels of nurses working at a University Hospital. Journal of Religion and Health, 4(3), 273-282. https://doi.org/10.1007/s10943-019-00786-x
  4. Avşaroğlu, S., & Okutan, H. (2018). Investigation of life satisfaction optimism and psychological symptom levels of parents with disabled children. MANAS Journal of Social Research, 7(1), 59-76.
  5. Avşaroğlu, S., & Güleş, E. (2019). Examining the life satisfaction of parents of children with special needs in terms of self-compassion and compassion levels. Kastamonu Education Journal, 27(1), 365-376. https://doi.org/10.24106/kefdergi.2960
  6. Başaran, S., Güzel, R., & Sarpel, T. (2005). Quality of life and health outcome assessment questionnaires. Romatizma, 20(1), 55-63.
  7. Çalışır, H., Karabudak, SD, Karataş, P., Tosun, A.F., & Meşealan, İ. (2018). Family burden and hopelessness levels of mothers with children with cerebral palsy. Dokuz Eylül University Faculty of Nursing Electronic Journal, 11(2), 147-56.
  8. Çeler, H.G., Özyurt, B.H., Elbi, H., & Özcan, F. (2018). Evaluation of quality of life and burden of care in relatives of breast cancer patients. Ankara Medical Journal, 2, 164-74. https://doi.org/10.17098/amj.435259
  9. Çingöl, N., Çelebi, E., Zengin, S., & Karakaş, M. (2018). Examination of compassion levels of nursing department students in a school of health. Klinik Psikiyatri Dergisi, 21, 61-67. https://doi.org/10.5505/.2018.65487
  10. Dikmen, Y., & Aydın, Y. (2016). Compassion fatigue in nurses: What? How? What to do? Journal of Human Rhythm, 2(1), 13-21.
  11. Durà-Vilà, G., Dein, S., & Hodes, M. (2010). Children with intellectual disability: Again not a loss: Parental beliefs and family life. Clinical Child Psychology and Psychiatry, 15(2), 171-184. https://doi.org/10.1177/1359104509341009
  12. Emir, A., Tarakcı, D., & Doğan, S. (2020). Examination of caregiver burden and compassion fatigue in mothers of children with special needs. Haliç University Journal of Health Sciences, 3(3), 153-60.
  13. Erdem, H. (2019). The relationship between care burden and compassion level in parents of stroke individuals [Unpublished doctoral thesis, T.C. Sivas Cumhuriyet University]. Council of Higher Education National Thesis Center.
  14. Gök, G.A. (2015). The unbearable weight of compassion: Compassion fatigue in nurses. Süleyman Demirel University Faculty of Economics and Administrative Sciences Journal, 20(2), 299-313.
  15. Günbeği, O. (2022). Comparison of caregiving burden and stress levels of mothers giving care to children with cerebral palsy receiving treatment at home and in centers (Yayın no. 728183). [Doctoral Thesis, T.C. Haliç University]. Council of Higher Education National Thesis Center.
  16. İçağasıoğlu, A., Karatekin, B.D., Mesci, E., Yumusakhuylu, Y., Murat, S., & Yasin, Ş. (2021). Assessment of adult patients with cerebral palsy. Turkish Journal of Physical Medicine and Rehabilitation, 66(4), 429-435. https://doi.org/10.5606/tftrd.2020.5614
  17. İnci, F.H., & Erdem, M. (2008). Validity and reliability of adapting the Caregiving Burden Scale into Turkish. Atatürk University School of Nursing Journal, 11(4), 85-95.
  18. İşgör, İ. (2017). Examining the predictive effect of compassion on subjective well-being. Gaziantep University Journal of Social Sciences, 16(2), 425-436. https://doi.org/10.21547/jss.290441
  19. Jafari, H., Ebrahimi, A., Aghaei, A., & Khatony, A. (2018). The relationship between care burden and quality of life in parents of hemodialysis patients. BMC Nephrology, 19(1), 1-8. https://doi.org/10.1186/s12882-018-1120-1
  20. Karcı, G.U., Yoldaşcan, B.E., & Okyay, R.A. (2018). Evaluation of the problems and care burden faced by family members giving care to elderly individuals. Kocaeli Medical Journal, 7(3), 146-153. https://doi.org/10.5505/ktd.2018.93064
  21. Khan, S.A., Saeed, F.U.R., & Ayaz, S.B. (2021). Severity of depression and anxiety among parents of children with cerebral palsy and their correlation with functional capabilities of the children. Pakistan Armed Forces Medical Journal, 71(4), 1327-1331. https://doi.org/10.51253/pafmj.v71i4.2706
  22. Lee, M.H., Matthews, A.K., & Park, C. (2019). Determinants of health-related quality of life among mothers of children with cerebral palsy. Journal of Pediatric Nursing, 44, 1-8. https://doi.org/10.1016/j.pedn.2018.10.001
  23. Maimani, D., Alhumedi, N., & Alghamdi, A. (2019). The prevalence of psychological morbidities and the determinant of care givers of children with intellectual disabilities in specialized centers in Jeddah 2018. Journal of Preventive Medicine and Holistic Health, 5(1), 27-31. https://doi.org/10.18231/j.jpmhh.2019.005
  24. Naeem, F., Arif, S., Asghar, A., & Mahmood. Z. (2018). Psychosocial stressors, burnout and mental health problems in parents of children with cerebral palsy. Journal of Postgraduate Medical Institute, 32(4), 372-377.
  25. Özan, A. (2019). Determination of compassion and compassion fatigue in intensive care nurses (Publication no. 534288). [Master's thesis T.C. Atatürk University]. Council of Higher Education National Thesis Center.
  26. Özşenol, F., Işıkhan, V., Ünay, B., Aydın, H.İ., Akın, R., & Gökçay, E. (2003). Evaluation of the functions of families with disabled children. Gülhane Medical Journal, 45(2), 156- 164.
  27. Park, E.Y., & Nam, S.J. (2019). Time burden of caring and depression among parents of individuals with cerebral palsy. Disability and Rehabilitation, 41(13), 1508-1513. https://doi.org/10.1080/09638288.2018.1432705
  28. Pelchat, D., Ricard, N., Bouchard, J.M., et al. (1999). Adaptation of parents in relation to their 6-month-old infant’s type of disability. Child Care Health and Development, 25(5), 377- 398. https://doi.org/10.1046/j.1365-2214.1999.00107.x
  29. Piştav, Akmeşe, P., & Kayhan, N. (2016). Examining the perceived social support levels of mothers with children with cerebral palsy in early childhood. Sakarya University Journal of Education, 6(3), 146-61. https://doi.org/10.19126/suje.281337
  30. Polat, F. N., & Erdem, R. (2017). Merhamet yorgunluğu düzeyinin çalışma yaşam kalitesi ile ilişkisi: sağlık profesyonelleri örneği. Süleyman Demirel Üniversitesi Sosyal Bilimler Enstitüsü Dergisi, 26(1), 291-312.
  31. Pommier, E.A. (2011). The compassion scale. Dissertation Abstracts International Section A: Humanities and Social Sciences, 72, 1174.
  32. Pruitt, D.W., & Tsai, T. (2009). Common medical comorbidities associated with cerebral palsy. Physical Medicine and Rehabilitation Clinics of North America, 20(3), 453-467. https://doi.org/10.1016/j.pmr.2009.06.002
  33. Seven, A., Doğan, S.G., Kınık, A., Toraman, K., Daşkın, G., Sevinen, G.G., & Doğru, T. (2019). Compassion level of nursing department intern students and affecting factors: Pilot study. Online Turkish Journal of Health Sciences, 4(3), 273-282. https://doi.org/10.26453/otjhs.546027
  34. Sıkılmaz, D. Ç. (2018). Care burden of those who care for bedridden patients at home and affecting factors (Publication no. 507808). [Master's thesis, T.C. Istanbul Medipol University]. Council of Higher Education National Thesis Center.
  35. Sood, S., Jafferany, M., Vinaya, & Kumar, S. (2020). Depression, psychiatric comorbidities, and psychosocial implications associated with acne vulgaris. Journal of Cosmetic Dermatology, 19(12), 3177-3182. https://doi.org/10.1111/jocd.13753
  36. Tagher, C. G., & Knapp, L. M. (2020). Pediatric nursing: A case-based approach. Wolters Kluwer.
  37. Toledano-Toledano F., & Moral de la Rubia J. (2018). Factors associated with anxiety in family parents of children with chronic diseases. Biopsychosocial Medicine, 12(1), 1-10. https://doi.org/10.1186/s13030-018-0139-7
  38. Tosun, A.S., Doğan, S., Kartın, P.T., & Zincir, H. (2015). Caregiving burden and quality of life of parents of cancer patients receiving radiotherapy. Anatolian Journal of Nursing and Health Sciences, 18, 9-16.
  39. Törüner, E. K., & Büyükgönenç, L. (2017). Child health: Basic nursing approaches. Gökçe Offset & Göktuğ Publishing, 614-25.
  40. Turğut, A. (2019). Determination of care burden and loneliness levels of mothers with children with cerebral palsy (Publication no. 547466). [Master's thesis, T.C. Istanbul Okan University]. Council of Higher Education National Thesis Center.
  41. Türkmen, S.N., Özgedirgen, Y.B., & Uzun, M. (2016). Care burden and perceived social support in families of individuals with mental disorders. International Refereed Journal of Psychiatry and Psychology Research, 5, 55-75.
  42. Vitrikas, K., Dalton, H., & Breish, D. (2020). Cerebral palsy: An overview. American Family Physician, 101(4), 213-220.
  43. Xu, N., Matsumoto, H., Hyman, J., Roye, B., Kim, H., & Roye, D.P. (2020). Evaluation of assessment of caregiver experience with neuromuscular disease: Reliability and responsiveness of a new caregiver-reported outcome measure in patients with cerebral palsy. Translational Pediatrics, 9(4), 507-512. https://doi.org/10.21037/tp-19-176
  44. Yeşil, T., Uslusoy, E.Ç., & Korkmaz, M. (2016). Examination of care burden and quality of life of parents of people with chronic diseases. Gümüşhane University Journal of Health Sciences, 5(4), 54-66.
  45. Yıldırım, M., Düken, M. E., Suna Dağ, Y., & Yayan, E. H. (2020). Comparison of care burden of mothers and fathers of children with cerebral palsy. Celal Bayar University Health Sciences Institute Journal, 7(2), 130-135. https://doi.org/10.34087/cbusbed.605646
  46. Yörük, B. N., & Avcı, Ö. (2021). Care burden and affecting factors in mothers of children with cerebral palsy. Göbeklitepe Journal of Health Sciences, 4(4), 26-40.
  47. Zarit, S.H., Reever, K.E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20(6), 649–655. https://doi.org/10.1093/geront/20.6.649