Dergiler / International Journal of Health Services Research and Policy / 2020 / Cilt: 5 - Sayı: 3

THE EFFECTS OF CARE-GIVING UPON FAMILY MEMBERS OF INDIVIDUALS WHO ARE TREATED IN THE PALLIATIVE CARE UNIT: A PHENOMENOLOGICAL APPROACH

Sayfa
215–228
Yayın Tarihi
2020-12-25
DOI
—
🏛️Bu makalenin bibliyografik verileri ve tam metin bağlantısı DergiPark üzerinden sağlanmıştır.
DergiPark Kaydı ↗
✨

Yapay Zeka Hızlı Bakış & Çıkarımlar

AI Insight
⚡ TL;DR(1 Cümlede Hızlı Çıkarım)

The problems and needs of family members should be questioned in clinical settings, and they should be directed to support units.

📌 3 Maddede Bu Makale

🎯
Amaç & Hipotez:Care giving family members are individuals who are directly involved in the care of a life-threatening patient, often facing a wide range of tasks, such as physical care, providing emotional support, and taking part in the treatment process.
📊
Temel Bulgular & Veri:This descriptive phenomenological qualitative study was conducted with a total of 16 family members who had been taking primary care of patients for at least three months and agreed to participate in the study.
💡
Sonuç & Katkı:The problems and needs of family members should be questioned in clinical settings, and they should be directed to support units.
🔬Tür:Araştırma Makalesi
📍Kapsam:Genişletilmiş Akademik Örneklem
⚙️Değişkenler:Palliative care · Family member · Experience

Abstract

Care giving family members are individuals who are directly involved in the care of a life-threatening patient, often facing a wide range of tasks, such as physical care, providing emotional support, and taking part in the treatment process. This research was carried out to determine effects of care-giving upon family members of individuals who are treated in the palliative care unit. This descriptive phenomenological qualitative study was conducted with a total of 16 family members who had been taking primary care of patients for at least three months and agreed to participate in the study. The data were collected in 35-40 minutes by face-to-face interview with a semi-structured interview form. Colaizzi’s phenomenological data analysis method was used in the evaluation of the data, and 5 themes were determined. Family members participating in the research stated that they experienced physiological problems such as pain, sleep problems and fatigue; psychological problems such as stress and fear; economic problems due to job losses and treatment costs; social problems for reasons such as isolation and problems in family relations such as change in roles and communication disruption. As a result of the research, it was determined that especially all of the family members had psychological and social problems. The problems and needs of family members should be questioned in clinical settings, and they should be directed to support units.

🔖

Bu Makaleye Atıf Yap

AYIK, D. B., ŞENTÜRK, S. (2020). THE EFFECTS OF CARE-GIVING UPON FAMILY MEMBERS OF INDIVIDUALS WHO ARE TREATED IN THE PALLIATIVE CARE UNIT: A PHENOMENOLOGICAL APPROACH. International Journal of Health Services Research and Policy, Cilt: 5 - Sayı: 3, 215–228. https://ajindex.com/articles/767435

📄 Tam Metin PDF Okuyucu

📄

PDF görüntüleyici hazırlanıyor...

Kaynakça (11)

  1. Çolak, D., “Palliative care models around the world”. Turkiye Klinikleri Anesthesiology Reanimation - Special Topics, 10(1), 13-9, 2017
  2. Sarmento, V.P., Gysels, M., Higginson, I.J., Gomes, B, “Home palliative care works: but how? A meta-ethnography of the experiences of patients and family caregivers”. BMJ Supportive & Palliative Care, 7(4), 390-403, 2017. Doi: 10.1136/bmjspcare-2016-001141
  3. Goldsmith, J., Ragan, S.L., “Palliative care and the family caregiver: trading mutual pretense (empathy) for a sustained gaze (compassion) ”. Behavioral Sciences, 7(2), 19, 2017. Doi: 10.3390/bs7020019
  4. Kılıç, S.T., Öz, F., “Problems and quality of life of family members caring cancer patients, and interventions”. Journal of Hacettepe University Faculty of Nursing, 6(3), 197-204, 2019.Doi: 10.31125/hunhemsire.630828
  5. Naoki, Y., Matsuda, Y., Maeda, I., Kamino, H., Kozaki, Y., Tokoro, A., Maki, N., Takada, M., “Association between family satisfaction and caregiver burden in cancer patients receiving outreach palliative care at home”. Palliative & Supportive Care, 16(3), 260-268, 2018. Doi: 10.1017/S1478951517000232
  6. Veloso, V.I., Tripodoro, V.A., “Caregivers burden in palliative care patients: a problem to tackle”. Current Opinion in Supportive and Palliative Care, 10(4), 330-335, 2016. Doi: 10.1097/SPC.0000000000000239
  7. Yıldız, E., Dedeli, Ö., Çınar Pakyüz, S., “Evaluation of care burden and quality of life among family caregivers of patients with cancer”. Journal of Education and Research in Nursing, 13(3), 216-225, 2016. Doi: 10.5222/HEAD.2016.216
  8. Robinson, J., Gott, M., Ingleton, C., “Patient and family experiences of palliative care in hospital: What do we know? An integrative review”. Palliative Medicine, 28(1),18-33, 2014. Doi: 10.1177/0269216313487568
  9. Ullrich, A., Ascherfeld, L., Marx, G., Bokemeyer, C., Bergelt, C., Oechsle, K., “Quality of life, psychological burden, needs, and satisfaction during specialized inpatient palliative care in family caregivers of advanced cancer patients”. BMC Palliative Care, 16(1), 31, 2017. Doi: 10.1186/s12904-017-0206-z
  10. Córdova, M.I.P. de., Canales, R., Krederdt, S., Gutiérrez-Gómez, T., Hernandez, R.L., “The relationship of the quality of life and burden of informal caregivers of patients with cancer in Lima, Peru”. Journal of Nursing Education and Practice, 6(8), 36, 2016. Doi: 10.5430/jnep.v6n8p36
  11. Silva, R.S. da., Trindade, G.S.S., Paixão, G.P. do N., Silva, M.J.P. da., “Famil