Dergiler / Cerrahpaşa Medical Journal / 2021 / Cilt: 45 - Sayı: 1

Ailesel Akdeniz Ateşi Olan Çocuk ve Ergenlerde Sağlıkla İlişkili Yaşam Kalitesinin Değerlendirilmesi

Evaluation of Health-Related Quality of Life in Children and Adolescents with Familial Mediterranean Fever

Sayfa
21–27
Yayın Tarihi
2022-10-12
DOI
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In adolescents, HRQOL-general,-social, -school, and -emotional scores were higher than children (p

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Amaç & Hipotez:Objective: Health-related quality of life (HRQOL) is a concept that assesses the effects of physical symptoms, functional status, andcurrent illness on psychological and social functioning.
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Temel Bulgular & Veri:In this study, we aimed to examine the quality of life in children and adolescentswith familial Mediterranean fever (FMF) according to personal and disease-related factors.Methods: A total of 257 children and adolescents with FMF aged 8–18 years were included in the study.
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Sonuç & Katkı:In adolescents, HRQOL-general,-social, -school, and -emotional scores were higher than children (p
🔬Tür:Araştırma Makalesi
📍Kapsam:Genişletilmiş Akademik Örneklem
⚙️Değişkenler:Alan Parametreleri

Abstract

Objective: Health-related quality of life (HRQOL) is a concept that assesses the effects of physical symptoms, functional status, andcurrent illness on psychological and social functioning. In this study, we aimed to examine the quality of life in children and adolescentswith familial Mediterranean fever (FMF) according to personal and disease-related factors.Methods: A total of 257 children and adolescents with FMF aged 8–18 years were included in the study. The Juvenile Auto-inflammatory Disease Multidimensional Assessment Report was used for assessment of functional ability (self-report scale), pain (visual analog scale - VAS), therapeutic compliance, and HRQOL (physical, social, school, and emotional status). An increase in all subscale scores indicated a worsening.Results: The mean age of the patients was 12.4±2.63 years, and 132 (51.4%) of them were women. In adolescents, HRQOL-general,-social, -school, and -emotional scores were higher than children (p

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Bu Makaleye Atıf Yap

Doğangün, B., Yıldız, M., Kasapçopur, Ö., Barut, K., Şahin, S., Durcan, G., Haslak, F., Kadak, M. T., Adrovic, A. (2022). Ailesel Akdeniz Ateşi Olan Çocuk ve Ergenlerde Sağlıkla İlişkili Yaşam Kalitesinin Değerlendirilmesi. Cerrahpaşa Medical Journal, Cilt: 45 - Sayı: 1, 21–27. https://ajindex.com/articles/473111

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Kaynakça (13)

  1. Adrovic A, Sahin S, Barut K, Kasapcopur O. Familial Mediterranean fever and periodic fever, aphthous stomatitis, pharyngitis, and adenitis (PFAPA) syndrome: shared features and main differences. Rheumatol Int 2019
  2. [Crossref] 2. Barut K, Pamuk G, Adrovic A, Sahin S, Kaplan A, Guler M, et al. Comparison of Familial Mediterranean Fever and juvenile idiopathic arthritis patients according to family origin. Turk Arch Pediatr 2018
  3. [Crossref] 3. Ozen S, Bilginer Y. A clinical guide to autoinflammatory diseases: familial Mediterranean fever and next-of-kin. Nat Rev Rheumatol 2014
  4. [Crossref] 4. Yıldız M, Haşlak F, Adrovic A, Barut K, Kasapçopur Ö. Autoinflammatory Diseases in Childhood. Balkan Med J 2020
  5. [Crossref] 5. Samuels J, Ozen S. Familial Mediterranean fever and the other autoinflammatory syndromes: evaluation of the patient with recurrent fever. Curr Opin Rheumatol 2006
  6. [Crossref] 6. La Regina M, Ben-Chetrit E, Gasparyan AY, Livneh A, Ozdogan H, Manna R. Current trends in colchicine treatment in familial Mediterranean fever. Clin Exp Rheumatol 2013
  7. 31(3 Suppl 77): 41-6. 7. Çakın Memik N, Ağaoğlu B, Coşkun A, Üneri ÖŞ, Karakaya I. The Validity and Reliability of the Turkish Pediatric Quality of Life Inventory for Children 13-18 Years Old. Türk Psikiyatri Dergisi 2007
  8. Eiser C, Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technol Assess 2001
  9. [Crossref] 9. Tucker LB. Whose life is it anyway? Understanding quality of life in children with rheumatic diseases. J Rheumatol 2000
  10. Haverman L, Grootenhuis MA, van den Berg JM, van Veenendaal M, Dolman KM, Swart JF, et al. Predictors of health-related quality of life in children and adolescents with juvenile idiopathic arthritis: Results from a web-based survey. Arthritis Care Res 2012
  11. [Crossref] 11. Petersson C, Simeonsson RJ, Enskar K, Huus K. Comparing children’s self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY). Health Qual Life Outcomes 2013
  12. [Crossref] 12. McDougall J, Wright V, Schmidt J, Miller L, Lowry K. Applying the ICF framework to study changes in quality-of-life for youth with chronic conditions. Dev Neurorehabil 2011
  13. [Crossref] 13. Makay B, Unsal E, Arslan N, Varni JW. Health-related quality of life of school-age children