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Journals / Güncel Pediatri / 2020 / Cilt: 18 Sayı: 1

The Impact of Functional Independence Level and Age on the Quality of Life of Mothers with Down Syndrome Children

Down Sendromlu Çocuklarin Günlük Yaşamdaki Fonksiyonel Düzeyinin Ve Yaşinin Annelerin Yaşam Kalitesine Etkisi

Bilge BAŞAKÇI ÇALIK
Sebahat Yaprak ÇETİN
Mustafa Can KILIÇ
Ferruh TAŞPINAR
Ümmühan BAŞ ASLAN
Pages
29–40
Publication Date
2020-04-15
DOI
—
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AI Summary & Key Takeaways

AI Insight
⚡ TL;DR(Too Long; Didn't Read)

In addition, it was found no relationships between the quality of life of mothers and children age in the all groups (p>0,05).

📌 3 Key Takeaways

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Objective & Hypothesis:INTRODUCTION: This study was investigate the impact of level of functional independence and ages on the quality of life of the mothers in children with Down Syndrome.
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Key Findings & Data:MATERIALS and METHODS: Thirtyseven Down syndrome children (7.9±3.5 years) were included in this study.
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Conclusion & Impact:In addition, it was found no relationships between the quality of life of mothers and children age in the all groups (p>0,05).
🔬Design:Research Article
📍Scope:Comprehensive Sample
⚙️Variables:Anne · çocuk · Down sendromu

Abstract

INTRODUCTION: This study was investigate the impact of level of functional independence and ages on the quality of life of the mothers in children with Down Syndrome. MATERIALS and METHODS: Thirtyseven Down syndrome children (7.9±3.5 years) were included in this study. Functional independent level of children were evaluated by using Functional Independence Measure, mothers quality of life were evaluated by using Sort Form-36. Down syndrome children were classified according their Functional Independence Measure total score into two groups; need observation (36-90 scores) (n=19), and independent (91-126 scores) (n=18) groups. RESULTS: Functional Independence Measure total scores of children in need obsevation group and children in independent group were 73.7±15.4, 106.7±11.6, respectively. Sort Form -36 Physical, Sort Form -36 Mental and Sort Form -36 Total scores of children in need obsevation group were 53.1±25.1, 49.6 ± 14.9 and 102.7±37.4 and children in independent group scores were 68.3±21.6, 62.1±13,9 and 130.5±33.7, respectively. When we compared Sort Form -36 Mental and Sort Form -36 Total scores of the groups were significant in favor of independent group (p<0,05), but the difference of Sort Form-36 Physical score was insignificant (p>0,05). In addition, it was found no relationships between the quality of life of mothers and children age in the all groups (p>0,05). CONCLUSIONS: The results of our study suggested that functional dependence level of Down syndrome children effects on mothers’ quality of life and affected domain of quality of life was mental health. It was seen that the age of Down syndrome children did’nt has effect on quality of life of mothers.

Özet

GİRİŞ ve AMAÇ: Bu çalışma, Down sendromlu çocukların günlük yaşamdaki işlevsel düzeyinin ve yaşının, annelerin yaşam kalitesi üzerine etkisini incelemek amacıyla planlanmıştır. YÖNTEM ve GEREÇLER: Çalışmaya, yaş ortalaması 7,9±3,5 yıl olan Down sendromlu 37 çocuk alındı. Çocukların işlevsel bağımsızlık düzeyi, İşlevsel Bağımsızlık Ölçeği ile, annelerin yaşam kalitesi Kısa Form-36 ile değerlendirildi. İşlevsel Bağımsızlık Ölçeği toplam puanı 36-90 arasında olanlar, gözlem gerektiren Down sendromu grubu (n=18) ve 91-126 arasında olanlar bağımsız Down sendromu grubu (n=19) olarak iki gruba ayrıldı. İstatistiksel incelemede Mann-Whitney U testi ve Spearman korelasyon testi kullanıldı. BULGULAR: Gözlem gerektiren Down sendromlu çocukların toplam İşlevsel Bağımsızlık Ölçeği puanları 73,7±15,4 iken, bağımsız Down sendromu grubundaki çocukların puanları 106,7±11,6 bulundu. Her iki grup açısından ailelerin Kısa Form-36 zihinsel, fiziksel ve toplam puanları sırasıyla, gözleme ihtiyaç duyanların; 49,6±14,9, 53,1±25,1 ve 102,7±37,4 iken, bağımsızların; 62,1±13,9, 68,3±21,6 ve 130,5±33,7’dir. Gruplar karşılaştırıldığında Kısa Form-36 Zihinsel ve Kısa Form-36 Toplam puanları bağımsız Down sendromlu çocukların aileleri lehine anlamlı iken (p<0,05), Kısa Form-36 Fiziksel puanı açısından fark anlamsızdı (p>0,05). Bunun yanı sıra, çocukların yaşları ile annelerin yaşam kalitelerinin tüm alt testleri arasında her iki grupta herhangi bir ilişki bulunmadı (p>0,05). TARTIŞMA ve SONUÇ: Çalışmamızın sonucu, Down sendromlu çocukların işlevsel bağımsızlık düzeyine bağlı olarak ailelerin yaşam kalitesinin etkilendiği ve yaşam kalitesindeki etkilenmenin zihinsel açıdan olduğunu düşündürmüştür. Çocuğun yaşı ile annenin yaşam kalitesinin ilişkili olmadığı görülmüştür.

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Cite This Article

ÇALIK, B. B., ÇETİN, S. Y., KILIÇ, M. C., TAŞPINAR, F., ASLAN, Ü. B. (2020). The Impact of Functional Independence Level and Age on the Quality of Life of Mothers with Down Syndrome Children. Güncel Pediatri, Cilt: 18 Sayı: 1, 29–40. https://ajindex.com/articles/989432

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References (17)

  1. Lauteslager PEM. Down Sendromlu çocuklarda motor gelişim ve müdahalesi, Baskı Evi Matbaa, Hollanda, 2004. 2.Leonard S, Msall M, Bower C, Tremont M, Leonard H. Functional status of school-aged children with Down syndrome. J Paediatr Child Health. 2002
  2. 160–5. 3.Carr J. Mental and motor development in young mongol children. J Ment Defic Res. 1970
  3. Connolly BH, Michael BT. Performance of retarded children, with and without Down’s syndrome, on the Bruininks Oseretsky test of motor proficiency. Phys Ther. 1986
  4. Damrosch S, Perry L. Self-reported adjustment, chronic sorrow, and coping of parents of children with Down syndrome. Nurs Res. 1989
  5. 25– 30. 6.Olshansky S. Chronic sorrow: A response to having a mentally defective child. Soc Casework. 1962
  6. 190–3. 7.Wikler L, Wasow M, Hatfied E. Chronic sorrow revisited: Parents vs. professional depiction of the adjustment of parents of mentally retarded children. Am J Orthopsychiat. 1981
  7. 63–70. 8.Olsson MB, Hwang PC. Depression in mothers and fathers of children with intellectual disability. J Intellect Disabil Res. 2001
  8. 535–43. 9.Spangenberg J, Theron J. Stress and coping in parents of children with Down syndrome. Stud Psychol. 2000
  9. 41– 8. 10.Seltzer MM, Greenberg JS, Floyd FJ, Pettee Y, Hong J. Life course impacts of parenting a child with a disability. Am J Ment Retard. 2001
  10. 265– 86. 11.Hodapp RM. Families of persons with Down syndrome: New perspectives, findings, and research and service needs. Ment Retard Dev Disabil Res Rev. 2007
  11. Fidler DJ. The emergence of a syndrome-specific personality profile in young children with Down syndrome. Downs Syndr Res Pract. 2006
  12. 10(2): 53-60. doi: 10.3104/reprints.305. 13.Fidler DJ, Hepburn S, Rogers S. Early learning and adaptive behaviour in toddlers with Down syndrome: Evidence of an emerging behavioural phenotype. Downs Syndr Res Pract. 2006
  13. 9(3): 37-44. 14.Silverman W. Down syndrome: cognitive phenotype. Ment Retard Dev Disabil Res Rev. 2007
  14. Scorgie K, Sobsey D. Transformational outcomes associated with parenting children who have disabilities. Ment Retard. 2000
  15. 38(3): 195-206. 16.Van Riper M. A change of plans: the birth of a child with Down syndrome doesn’t have to be a negative experience. Am J Nurs. 2003
  16. Van Riper M. Families of children with Down syndrome: Responding to “a change of plans” with resilience. J Pediatr Nurs. 2007
  17. Baker BL, McIntyre