Journals / Psikiyatri Hemşireliği Dergisi / 2015 / Cilt: 6 - Sayı: 2

Living With A Person Who Has Dementia: A Study of Phenomenology

Demansı Olan Birey ile Yaşamak: Olgubilim Çalışması

Pages
91–99
DOI
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AI Summary & Key Takeaways

AI Insight
⚡ TL;DR(Too Long; Didn't Read)

The main role advising the nurses who provide care, researchers, educational, therapeutic, and demented as required by the advocate role the individual dealing only thinking also of the needs of patients, not caregivers of dementia is necessary to provide holistic care for caregivers and individuals

📌 3 Key Takeaways

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Objective & Hypothesis:The aim of this study was to determine the difficulties which the individuals experienced because of being in the position of care givers.
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Key Findings & Data:Methods: The study is qualitative and planned in phenomenological pattern, as it aims to do and present a detailed research of the attendants' perspectives on taking care of the patients with dementia.
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Conclusion & Impact:The main role advising the nurses who provide care, researchers, educational, therapeutic, and demented as required by the advocate role the individual dealing only thinking also of the needs of patients, not caregivers of dementia is necessary to provide holistic care for caregivers and individuals
🔬Design:Research Article
📍Scope:Comprehensive Sample
⚙️Variables:Domain Parameters

Abstract

The aim of this study was to determine the difficulties which the individuals experienced because of being in the position of care givers. Methods: The study is qualitative and planned in phenomenological pattern, as it aims to do and present a detailed research of the attendants' perspectives on taking care of the patients with dementia. Data set of ten patients with dementia were used in the study.Results: The data obtained from semi-structured interviews were examined under the title of conception of dementia, conception of providing healthcare for dementia, life before the healthcare, change in lives after healthcare, feelings of having a relative who had dementia, difficulties while providing healthcare, ways of coping with dementia, advice on coping with dementia for other healtcare providers, metaphors which are built about providing healthcare.Conclusion: Being in the position of care giver; whether or not it is related with personal specialities, the closeness of the person cared, being ready for this role (being woman), care giving restricts individual's life in a large scale and it causes him/her to do new arrangements. The main role advising the nurses who provide care, researchers, educational, therapeutic, and demented as required by the advocate role the individual dealing only thinking also of the needs of patients, not caregivers of dementia is necessary to provide holistic care for caregivers and individuals

Özet

Bu araştırma, demanslı bireylere bakım verenlerin bakım verici konumda olma ile ilgili yaşadığı güçlükler ve bu konudaki görüşlerini belirlemek amacıyla yapılmıştır.Gereç ve Yöntem: Araştırma nitel bir araştırmadır ve demanslı bireylere bakım verme konusunu katılımcıların bakış açısından ayrıntılı bir anlayışla araştırmayı ve ortaya koymayı amaçladığından fenomenolojik desende planlanmıştır. Demans tanısı almış 10 hastanın bakım verenleri ile görüşülmüştür.Bulgular: Yarı yapılandırılmış görüşmeden elde edilen veriler, demansın anlamı, bakım vermenin anlamı, bakım vermeye başlamadan önceki yaşam, bakım verme ile değişen hayatlar, demanslı bir yakına sahip olmanın oluşturduğu hisler, bakım verirken zorlanılan alanlar, baş etme tarzları, baş etme konusunda diğer bakım vericilere öneriler ve bakım verme işine ilişkin ürettikleri metaforlar başlıkları altında incelenmiştir.Sonuç: Bakım verici konumda olma bireysel özellikler, bakım verilen kişinin yakınlığı, bu role hazır oluş (kadın olma) ile ilgili olsun ya da olmasın, bakım verme bireyin yaşamını büyük ölçüde sınırlamakta ve yeni düzenlemeler yapmasına neden olmaktadır. Bakım verme konusunda aile üyelerinden destek alamadıkları için de yalnız kaldıkları görülmüştür. Temel rolü bakım verme olan hemşirelerin danışmanlık, araştırıcı, eğitici, tedavi edici ve savunucu rollerinin gereği olarak demanslı bireyle ilgilenirken yalnız hastanın değil bakım verenin gereksinimlerini de düşünmesi demanslı birey ile bakım verene bütüncül bakım vermesi gerekmektedir

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Cite This Article

LÖK, N., GÜNBAYI, İ., BULDUKOĞLU, K. (2015). Living With A Person Who Has Dementia: A Study of Phenomenology. Psikiyatri Hemşireliği Dergisi, Cilt: 6 - Sayı: 2, 91–99. https://ajindex.com/articles/308476

References (13)

  1. Napoles AM, Chadiha L, Eversley R, Moreno-John G. Reviews: developing culturally sensitive dementia caregiver interventions: are we there yet? Am J Alzheimers Dis Other Demen 2010;25:389-406.
  2. Gaugler JE, Mittelman MS, Hepburn K, Newcomer R. Clinically significant changes in burden and depression among dementia caregivers following nursing home admission. BMC Med 2010;8:85. Şahin ME, Özer C, Ölüç F, Tunç Z. Dementıa And Depressıon Among Nur- sıng Home Resıdents. Türk Geriatri Dergisi 2005;8:249-51
  3. Ganguli M, Dodge HH, Shen C, Pandav RS, et al. Alzheimer disease and mortality: a 15-year epidemiological study. Arch Neurol 2005;62:779-84. Haley WE. The family caregiver's role in Alzheimer's disease. Neurology 1997;48(5 Suppl 6):25-9.
  4. Tschanz JT, Piercy K, Corcoran CD, Fauth E, et al. Caregiver coping strate- gies predict cognitive and functional decline in dementia: the Cache Co- unty Dementia Progression Study. Am J Geriatr Psychiatry 2013;21:57-66.
  5. Levine C, Halper D, Peist A, Gould DA. Bridging troubled waters: fa- mily caregivers, transitions, and long-term care. Health Aff (Millwood) 2010;29:116-24.
  6. Akyar İ, Akdemir N. Strains of Caregivers of Alzheimer Patients. Sağlık Bi- limleri Fakültesi Hemşirelik Dergisi 2009;32-49.
  7. Garand L, Lingler JH, Deardorf KE, DeKosky ST, et al. Anticipatory grief in new family caregivers of persons with mild cognitive impairment and de- mentia. Alzheimer Dis Assoc Disord 2012;26:159-65.
  8. Sörensen S, Conwell Y. Issues in dementia caregiving: effects on mental and physical health, intervention strategies, and research needs. Am J Ge- riatr Psychiatry 2011;19:491-6.
  9. O'Connell ME, Germaine N, Burton R, Stewart N, et al. Degree of rurality is not related to dementia caregiver distress, burden, and coping in a predo- minantly rural sample. J Appl Gerontol 2013;32:1015-29.
  10. Ferri CP, Prince M, Brayne C, Brodaty H, et al. Global prevalence of demen- tia: a Delphi consensus study. Lancet 2005;366:2112-7.
  11. Ott CH, Kelber ST, Blaylock M. "Easing the way" for spouse caregivers of individuals with dementia: a pilot feasibility study of a grief intervention. Res Gerontol Nurs 2010;3:89-99.
  12. Piercy KW, Fauth EB, Norton MC, Pfister R, et al. Predictors of dementia caregiver depressive symptoms in a population: the Cache County de- mentia progression study. J Gerontol B Psychol Sci Soc Sci 2013;68:921-6.
  13. Williams A, Duggleby W, Eby J, Cooper RD, et al. Hope against hope: exp- loring the hopes and challenges of rural female caregivers of persons