Dergiler / Turkish Journal of Gastroenterology / 2021 / Cilt: 32 - Sayı: 9

The Assessment of the Quality of Life in Children with Chronic Liver Disease

Sayfa
774–781
DOI
—
🏛️Bu makalenin bibliyografik verileri ve tam metin bağlantısı DergiPark üzerinden sağlanmıştır.
DergiPark Kaydı ↗
✨

Yapay Zeka Hızlı Bakış & Çıkarımlar

AI Insight
⚡ TL;DR(1 Cümlede Hızlı Çıkarım)

It was observed that primary or symptomatic treatments have a positive impact on the perception of QoL, with the exception of steroid treatment.

📌 3 Maddede Bu Makale

🎯
Amaç & Hipotez:Background: Improvement in the quality of life (QoL) of patients with chronic diseases is as important as medical care.
📊
Temel Bulgular & Veri:Methods: For this study, 101 children with chronic liver disease, 100 healthy controls, and their parents were included.
💡
Sonuç & Katkı:It was observed that primary or symptomatic treatments have a positive impact on the perception of QoL, with the exception of steroid treatment.
🔬Tür:Araştırma Makalesi
📍Kapsam:Genişletilmiş Akademik Örneklem
⚙️Değişkenler:Alan Parametreleri

Özet

Background: Improvement in the quality of life (QoL) of patients with chronic diseases is as important as medical care. This study aimed to evaluate the QoL of children with chronic liver diseases and to determine related factors. Methods: For this study, 101 children with chronic liver disease, 100 healthy controls, and their parents were included. The Pediatric Quality of Life Scale (PedsQL) was used to evaluate health-related QoL; higher scores indicate better QoL. Patients were evaluated before and after initiation of treatment and being educated about their illness. Results: The mean patient age was 12.9 ± 3.9 years. Total PedsQL scores of the patients and the healthy control group were 38.6 ± 18.9 and 55.4 ± 14.3, respectively (P = .01). The scores of the parents of the patient and control groups were 35.4 ± 14.2 and 54.0 ± 16.9, respectively (P = .02). Patient and parent scores were positively correlated. Significantly higher scores were found in the 5-10 age group compared to the 10-15 and 15-18 age groups in the psychosocial score category. An increase in the QoL scores of patients who were started on medication other than steroid treatment was observed in the sixth month of treatment (35.8 ± 13.4 vs. 33.6 ± 8.9, P = .01, respectively). Conclusion: Both children with chronic liver diseases and their parents have a perceived lower QoL than healthy peers. The effect of chronic liver disease on psychosocial health is more pronounced in children older than 10 years. The quality of life is inversely proportional to the severity of the disease. It was observed that primary or symptomatic treatments have a positive impact on the perception of QoL, with the exception of steroid treatment.

🔖

Bu Makaleye Atıf Yap

DEMİRAL, M., ÖZKAN, T. M. B., ÖZGÜR, T., ÖZKAN, B., EREN, G. E., ALTAY, D. (2021). The Assessment of the Quality of Life in Children with Chronic Liver Disease. Turkish Journal of Gastroenterology, Cilt: 32 - Sayı: 9, 774–781. https://ajindex.com/articles/408885

📄 Tam Metin PDF Okuyucu

📄

PDF görüntüleyici hazırlanıyor...

Kaynakça (13)

  1. Fauerholdt L, Schlichting P, Christensen E, et al. Conversion of micronodular cirrhosis into macronodular cirrhosis. Hepatology. 1983
  2. 3(6):928-931. [CrossRef] 2. Sawyer MG, Reynolds KE, Couper JJ, et al. A two-year prospective study of the health-related quality of life of children with chronic illness-the parents’ perspective. Qual Life Res. 2005
  3. 14(2):395-405. [CrossRef] 3. Petersen C, Schmidt S, Power M, Bullinger M, DISABKIDS Group. Group-Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: A European perspective. Qual Life Res. 2005
  4. 14(4):1065-1077. [CrossRef] 4. Varni JW, Burwinkle TM, Lane MM. Health-related quality of life measurement in pediatric clinical practice: An appraisal and precept for future research and application. Health Qual Life Outcomes. 2005
  5. [CrossRef] 5. Kocaeli Üniversitesi, Tezi U. Üneri ÖŞ. Çocuklar İçin Yaşam Kalitesi Ölçeğinin 2-7 Yaşlarındaki Türk Çocuklarında Geçerlilik ve Güvenilirliği[Thesis]
  6. Memik NÇ, Ağaoğlu B,Coşkun A, et al. 13-18 yaş Ergen Formunun Geçerlilik ve Güvenirliliği. Türk Psikyatri. Derg 2007
  7. Bozzini AB, Neder L, Silva CA, Porta G. Decreased health-related quality of life in children and adolescents with autoimmune hepatitis. J Pediatr (Rio J) 2019
  8. 95(1):87-93. [CrossRef] 8. Tehranian S, Jafari S, Yousofi J, et al. Health-related quality of life (HRQOL) in children with chronic liver disease in North East Iran using PedsQL™ 4.0. Electron Phys. 2015
  9. 7(4):1214-1219. [CrossRef] 9. Nydegger A, Srivastava A, Wake M, Smith AL, Hardikar W. Healthrelated quality of life in children with hepatitis C acquired in the first year of life. J Gastroenterol Hepatol. 2008
  10. 23(2):226-230. [CrossRef] 10. Akbulut S, Gunes G, Saritas H, et al. Differences in parents of pediatric liver transplantation and chronic liver disease patients. World J Clin Cases. 2020
  11. 8(11):2162-2172. [CrossRef] 11. Sundaram SS, Alonso EM, Haber B, Childhood Liver Disease Research and Education Network (ChiLDREN), et al. Health related quality of life in patients with biliary atresia surviving with their native liver. J Pediatr. 2013
  12. 163(4):1052-7.e2. [CrossRef] 12. Varni JW, Seid M, Kurtin PS, Peds QL. PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care. 2001
  13. 39(8):800-812. [CrossRef] 13. Suris JC, Michaud PA, Viner RM.