Journals / İstanbul Medical Journal / 2020 / Cilt: 21 - Sayı: 1

Health Care Transitions for Children with Sickle Cell Disease: Interventions, Perspectives of Health Care Providers and Caregivers

Orak Hücreli Hastalığı Olan Çocuklarda Sağlık Bakım Geçişleri: Müdahaleler, Sağlık Bakımı Sağlayıcıları ve Bakıcılarına Bakış Açıları

Pages
1–6
Publication Date
2022-10-19
DOI
—
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AI Summary & Key Takeaways

AI Insight
⚡ TL;DR(Too Long; Didn't Read)

More well-designed studies and holisticapproaches are needed to improve the health care transitionin children with SCD.

📌 3 Key Takeaways

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Objective & Hypothesis:The incapacitating episodic complications associated with theSickle Cell disease (SCD) limit the opportunities of those SCDpatients in education, societal roles, career options, and qualityof life, leading to an increase in under-5 mortality.
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Key Findings & Data:The UnitedNations included the reduction of newborns and childrenunder-5 mortality among the Sustainable Development Goals.Healthcare providers and caregivers are often involved in theprocess, have their own perceptions, and challenges.
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Conclusion & Impact:More well-designed studies and holisticapproaches are needed to improve the health care transitionin children with SCD.
🔬Design:Review & Systematic Survey
📍Scope:Comprehensive Sample
⚙️Variables:Domain Parameters

Abstract

The incapacitating episodic complications associated with theSickle Cell disease (SCD) limit the opportunities of those SCDpatients in education, societal roles, career options, and qualityof life, leading to an increase in under-5 mortality. The UnitedNations included the reduction of newborns and childrenunder-5 mortality among the Sustainable Development Goals.Healthcare providers and caregivers are often involved in theprocess, have their own perceptions, and challenges. This paperaimed to review relevant studies regarding aspects of healthcare providers, caregivers, and intervention programs towardstrengthening the health care transition in children with SCDs.Literature searched was conducted into PubMed to identifyrelevant studies. Several intervention programs have beendeveloped and tested, including the transtheoretical model,self-efficacy, theory of planned behavior, and bioecologicalmodel, among others. The available literature demonstratesthe efficacy of psychosocial, therapeutics, and technologicalinterventions for overcoming SCD-related complications. It wasfound that the use of wireless and information technology inhealth care transitions for children with SCD has been gainingmore attention. More well-designed studies and holisticapproaches are needed to improve the health care transitionin children with SCD.

Özet

Orak Hücre hastalığı (OHH) ile ilişkili aciz olan epizodik komplikasyonlar, OHH hastalarının eğitimdeki fırsatlarını, toplumsal rolleri, kariyer seçeneklerini ve yaşam kalitesini sınırlandırmakta ve 5 yaş altı ölüm oranlarının artmasına neden olmaktadır. Birleşmiş Milletler, Sürdürülebilir Kalkınma Hedefleri arasında yenidoğanların ve 5 yaş altı ölüm oranlarının azaltılmasını içeriyordu. Sağlık hizmeti sağlayıcıları ve bakıcıları genellikle sürece katılır, kendi algılarını ve zorluklarını yaşarlar. Bu yazıda, OHH’li çocuklarda sağlık hizmeti geçişini güçlendirmeye yönelik sağlık hizmeti sağlayıcıları, bakıcılar ve müdahale programlarının yönleriyle ilgili çalışmaları gözden geçirmeyi amaçladık. Aranan literatür ilgili çalışmaları tanımlamak için PubMed’de gerçekleştirildi. Transteorik model, öz yeterlik, planlı davranış teorisi ve biyoekolojik model gibi birçok müdahale programı geliştirildi ve test edildi. Mevcut literatür, OHH ile ilgili komplikasyonların üstesinden gelmek için psikososyal, terapötik ve teknolojik müdahalelerin etkinliğini göstermektedir. OHH’li çocuklar için sağlık hizmetlerinde telsiz ve bilgi teknolojilerinin kullanımının daha fazla dikkat çektiği tespit edildi. OHH’li çocuklarda sağlık hizmeti geçişini iyileştirmek için daha iyi tasarlanmış çalışmalara ve bütünsel bir yaklaşıma ihtiyaç vardır

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Cite This Article

Yau, A., Haque, M., Ibrahim, U. I. (2022). Health Care Transitions for Children with Sickle Cell Disease: Interventions, Perspectives of Health Care Providers and Caregivers. İstanbul Medical Journal, Cilt: 21 - Sayı: 1, 1–6. https://ajindex.com/articles/552314

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