Journals / Balkan Medical Journal / 2020 / Cilt: 37 - Sayı: 1

Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness

Pages
34–42
Publication Date
2022-10-11
DOI
—
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The physical health, psychosocial health, and total healthscores of healthy siblings of children with chronic disease weresignificantly lower than that of healthy siblings of healthy children(p

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Objective & Hypothesis:Background: Chronic disease of children can cause changes in thehealth-related quality of life (HrQoL) of the family members.Aims: To evaluate the HrQoL of healthy siblings of children withchronic disease.Study Design: Cross-sectional study.Methods: The study included healthy sibling of children with chronicdisease (cerebral palsy, epilepsy, diabetes, celiac disease, hematologic/oncologic disease, or asthma) and healthy sibling of healthy childrento evaluate the quality of life.
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Key Findings & Data:We used the Pediatric Quality of LifeInventory questionnaire; the physical health and psychosocial healthscores were calculated using the responses of the sibling and parent.The primary endpoint was the comparison of HrQoL scores of healthysiblings of children with chronic disease and that of healthy siblingsof healthy children.Results: This study included a respective healthy sibling of 191children with chronic disease and healthy sibling of 100 healthychildren.
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Conclusion & Impact:The physical health, psychosocial health, and total healthscores of healthy siblings of children with chronic disease weresignificantly lower than that of healthy siblings of healthy children(p
🔬Design:Survey & Empirical Study
📍Scope:Comprehensive Sample
⚙️Variables:Domain Parameters

Abstract

Background: Chronic disease of children can cause changes in thehealth-related quality of life (HrQoL) of the family members.Aims: To evaluate the HrQoL of healthy siblings of children withchronic disease.Study Design: Cross-sectional study.Methods: The study included healthy sibling of children with chronicdisease (cerebral palsy, epilepsy, diabetes, celiac disease, hematologic/oncologic disease, or asthma) and healthy sibling of healthy childrento evaluate the quality of life. We used the Pediatric Quality of LifeInventory questionnaire; the physical health and psychosocial healthscores were calculated using the responses of the sibling and parent.The primary endpoint was the comparison of HrQoL scores of healthysiblings of children with chronic disease and that of healthy siblingsof healthy children.Results: This study included a respective healthy sibling of 191children with chronic disease and healthy sibling of 100 healthychildren. The physical health, psychosocial health, and total healthscores of healthy siblings of children with chronic disease weresignificantly lower than that of healthy siblings of healthy children(p

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Cite This Article

DİNLEYİCİ, M., EREN, M., DAĞLI, F. Ş., ÖZDEMİR, C., HARMANCI, K., YARAR, C., ÇARMAN, K. B., ÇAMURDAN, A. D., ŞİMŞEK, E., KİREL, B. (2022). Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness. Balkan Medical Journal, Cilt: 37 - Sayı: 1, 34–42. https://ajindex.com/articles/460903

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References (14)

  1. Halfon N. Newacheck PW. Evolving notions of childhood chronic illness. JAMA 2010;303:665-6
  2. Rodrigues N, Patterson JM. Impact of severity of a child’s chronic condition on the functioning of two-parent families. J Pediatr Psychol 2007;32:417-26
  3. Barlow JH, Ellard DR. The psychosocial well-being of children with chronic disease, their parents and siblings: An overview of the research evidence base. Child Care Health Deve 2006;32:19-31
  4. Limbers CA, Skipper S. Health-related quality of life measurement in siblings of children with physical chronic illness: A systematic review. Fam Syst Health 2014;32:408-15
  5. Varni JW, Seid M, Kurtin PS. PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 2001;39:800-12
  6. Bansal M, Sharma KK, Bakhshi S, Vatsa M. Perception of Indian parents on healthrelated quality of life of children during maintenance therapy of acute lymphoblastic leukemia: A comparison with siblings and healthy children. J Pediatr Hematol Oncol 2014;36:30-6
  7. Hamblion EL, Moore AT, Rahi JS. The health-related quality of life of children with hereditary retinal disorders and the psychosocial impact on their families. Invest Ophthalmol Vis Sci 2011;52:7981-6
  8. Norris JM, Moules NJ, Pelletier G, Culos-Reed SN. Families of young pediatric cancer survivors: A cross-sectional survey examining physical activity behavior and health related quality of life. J Pediatr Oncol Nurs 2010;27:196-208
  9. Packman W, Greenhalgh J, Chesterman B, Shaffer T, Fine J, Van Zutphen K. Siblings of pediatric cancer patients: the quantitative and qualitative nature of quality of life. J Psychosoc Oncol 2005;23:87-108
  10. Wood LJ, Sherman E, Hamiwka LD, Blackman M, Wirrell E. Depression, anxiety, and quality of life in siblings of children with intractable epilepsy. Epilepsy Behav 2008;13:144-8
  11. Havermans T, Croock ID, Vercruysse T, Goethals E, Diest IV. Belgian siblings of children with a chronic illness: Is their quality of life different from their peers? J Child Health Care 2015;19:154-66
  12. Trama A, Dieci M. Quality of life in clinical trials for children. Eur J Clin Pharmacol 2011;67(Suppl 1):41-7
  13. Varni JW, Seid M, Rode CA. The PedsQL: Measurement model for the pediatric quality of life inventory. Med Care 1999;37:126-39
  14. Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL 4.0 as a pediatric population health measure: feasibility, reliabil